Neurocrine Privacy Policy
Neurocrine Biosciences, Inc. (“Neurocrine Biosciences”, “we”, “us” or “our”) is a neuroscience-focused, biopharmaceutical company with a simple purpose: to relieve suffering for people with great needs, but few options. For three decades, we have applied our unique insight into neuroscience and the interconnections between brain and body systems to advance medicines for the treatment of under-addressed neurological, neuroendocrine and neuropsychiatric disorders and we will continue to relentlessly pursue medicines to ease the burden of debilitating diseases and disorders.
This Privacy Policy sets forth the practices of Neurocrine Biosciences, and our subsidiaries and affiliates, regarding the collection, use and disclosure of your personal information in connection with our websites, including neurocrindev.wpengine.com, www.neurocrinemedical.com, www.neurocrine4pophealth.com, www.ingrezza.com, www.ingrezzahcp.com, www.takeontd.com, www.talkabouttd.com, www.inbracesupportprogram.com, https://mystudy.medable.com, and https://consent.medable.com (the “Sites”), and our clinical trials, products and services (together with the Sites, the “Services”). This Privacy Policy also describes the rights and choices you have with respect to your personal information.
This Privacy Policy does not apply to any information that may be collected by third parties that may link to our Sites. Please read this entire Privacy Policy before using our Services or submitting information to Neurocrine Biosciences. Neurocrine Biosciences may provide additional privacy notices to individuals at the time we collect their data. For example, we provide a specific privacy notice to clinical trial participants that describes our privacy practices in connection with conducting clinical trials. This type of an “in-time” notice will govern how we may process the information you provide at that time. For example, our privacy practices in connection with clinical trials are governed by applicable clinical trial protocols.
By using our Services, you agree to the terms of this Privacy Policy.
Individuals located in California should read the important information available here.
Individuals located in the European Union, European Economic Area, or United Kingdom (collectively, “Europe” or “European”) should read the important information available here.
Personal information we collect
How we share your personal information
Storage and transfer of personal information
Notice to California residents
We collect personal information about the following types of individuals: clinical trial participants, patients, patients’ family members, caregivers, or advocates, physicians and other health care professionals, clinical trial investigators, researchers, pharmacists, users of our Sites, and other individuals who interact directly with Neurocrine Biosciences or our service providers or business partners.
We collect personal information:
The types of personal information we collect and share depend on the nature of the relationship you have with us and the requirements of applicable laws. We may collect:
We may combine other publicly available information, such as information related to the organization for which you work, with the personal information that you provide us.
While you are using the Sites, we automatically log information provided to us by you, your computer or mobile devices, and your activity over time on the Sites, such as:
We also collect information about your use of our site through cookies and similar technology. Cookies contain certain information that a website can then use to make communication between your browser and this site more efficient, such as by tracking site navigation and personal preferences involving dynamic site content. To enable Neurocrine Biosciences to provide customized and personalized services, we may use cookies to store and sometimes track information about you. Please refer to our Cookie Policy for more details.
Some web browsers offer a “Do Not Track” function that can send a signal to websites regarding the user’s privacy preferences. Our Sites do not respond to such signals. To find out more about “Do Not Track,” please visit http://www.allaboutdnt.com.
We may use your personal information in a variety of ways, including the following:
We may use your personal information when necessary to facilitate our clinical trials, research, studies, and related activities that support product improvement, including:
We use your personal information as we believe necessary or appropriate to comply with applicable laws, lawful requests, and legal process, such as to respond to subpoenas or requests from government authorities.
We use your personal information as we believe necessary or appropriate to comply with regulatory monitoring and reporting obligations, such as those related to adverse events, product complaints, patient safety, and financial disclosures.
We may conduct research on users’ demographics, interests, and behavior based upon information you provide during use of our website. We may combine your information with information collected from other individuals to produce anonymous, aggregated statistical information that will not include personally identifiable information. We may use this aggregated information for our business purposes. We may also share this anonymous, aggregated information with third parties, or allow third parties to collect anonymous, aggregated information through our website. We do not have total control over these third parties or which methods they may use to collect information.
We use your personal information as we believe necessary or appropriate to:
We also may use your information as may be described in a notice to you at the time the information is collected, or in any other manner to which you consent.
We may disclose your personal information to professional advisors, such as lawyers, bankers, auditors, and insurers, where necessary in the course of the professional services that they render to us.
We may disclose your personal information to comply with any court order, law, or legal process; to enforce this Privacy Policy, our Terms & Conditions, or other agreements; if we believe disclosure is necessary or appropriate to protect the integrity, security, safety, or rights of Neurocrine Biosciences or any other person; or if you consent to such disclosure.
Neurocrine Biosciences may, in the future, sell or otherwise transfer some or all of its assets, including your personal information, to an affiliate or to a third party in connection with a business deal (or potential business deal) such as a merger, consolidation, acquisition, reorganization, sale of assets, or in the event of bankruptcy. We will make reasonable efforts to require the recipient to honor this Privacy Policy.
In some situations, Neurocrine Biosciences may have a separate agreement or relationship with you with respect to a specific type of processing of your data, such as if you participate in a special program, activity, event, or clinical trial. These situations will be governed by specific terms, privacy notices, or consent forms that provide additional information about how we will use your information. We will honor these additional terms with respect to your information and thus, strongly recommend you review the additional terms prior to participating in any programs.
Neurocrine Biosciences, or in some cases our agents or service providers, may store your personal information in an electronic database. We and our agents may also exchange such information with each other or with you over the internet or over intranet systems for the purposes of processing the data, mailing information to you in response to your request, or otherwise carrying out the Services.
We use reasonable efforts to protect the confidentiality of your personal information. However, there is always some risk involved when submitting information over the internet, and we cannot guarantee that our website is 100% safe from illegal tampering or “hacking.”
If you become aware that the personal information we maintain about you is inaccurate, incomplete, misleading, irrelevant or out of date, you may contact us.
You may opt out of marketing-related emails by clicking the “Unsubscribe” link at the bottom of each such email. You may continue to receive service-related and other non-marketing emails.
If you gave us consent to post a testimonial on our Sites, but wish to update or delete the testimonial, please contact us.
Where we are required by law to collect your personal information, or where we need your personal information in order to provide you with our Services, if you do not provide this information when requested (or you later ask to delete it), we may not be able to provide you with our Services and may need to terminate our relationship with you. We will tell you what information you must provide to us by designating it as required when we request the information or through other appropriate means.
Neurocrine Biosciences Services may contain links to third-party websites that we believe may offer useful information. We are not responsible for the privacy practices or content of these other websites. We encourage you to review the privacy policies of these third-party websites.
The Sites are not intended or designed to attract children under 13 years of age, and we do not knowingly collect information about children under age 13 in the United States through the Sites. If we learn that a child under age 13 has provided personal information without a parent or guardian’s consent, we will delete such information from our active databases.
Neurocrine Biosciences is headquartered in the United States and may have affiliates and service providers in other countries. Your personal information may be transferred to the United States or other locations outside of your state, province, country, or other governmental jurisdiction where privacy laws may not be as protective as those in your jurisdiction.
Individuals in the European Union should read the important information provided here about the transfer of personal information outside of the European Economic Area.
By using this website and voluntarily providing your personally identifiable information to us, you consent to the collection and use of such personally identifiable information as set forth in this Privacy Policy. If you do not agree to the terms of this Privacy Policy, please do not provide us with any information and do not use this site.
We reserve the right, at any time, to modify, alter, or update this policy, and any such modifications, alterations, or updates will be effective upon posting. In the event we modify this Privacy Policy, your continued use of the Services will signify your acceptance of the modified Privacy Policy.
Please contact us regarding this Privacy Policy or our privacy practices at:
Neurocrine Biosciences, Inc.
Attention: Legal Department
12780 El Camino Real
San Diego, CA 92130
Email: DPO@neurocrine.com
This Privacy Policy was last updated February 20, 2024.
We are required by the California Consumer Privacy Act of 2018 (“CCPA”) to provide to California residents an explanation of how we collect, use and share their personal information and of the rights and choices we offer California residents regarding our handling of the personal information.
This notice does not apply to the information we collect in connection with clinical trials or to any health or medical information we collect that is otherwise governed by California’s Confidentiality of Medical Information Act or the Health Insurance Portability and Accountability Act of 1996. This notice also does not apply to information related to our business contacts (including healthcare providers).
We do not sell personal information. As we explain in this Privacy Policy, we use cookies and other tracking tools to analyze website traffic and facilitate advertising. Please refer to the “Cookies and other information automatically collected” section in our Privacy Policy and our Cookie Policy for more information.
Here is a summary of how we currently collect, use and share personal information, and how we have collected, used and shared the information in the preceding 12 months:
| Personal information we collect | CCPA categories of personal information (definitions are available here) | Sources of personal information | Purposes for which we may collect and use personal information | Categories of third parties to which we disclose personal information |
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Analytics and advertising partners |
Personal information we collect
CCPA categories of personal information (definitions are available here)
Sources of personal information
Purposes for which we may collect and use personal information
Categories of third parties to which we disclose personal information
Analytics and advertising partners
Please note that we may also disclose your personal information to professional advisors, for compliance, or in connection with business transfers.
The CCPA grants California residents the following rights.
You are entitled to exercise the rights described above free from discrimination. Please note that the CCPA limits these rights by, for example, prohibiting us from providing certain sensitive information in response to an access request and limiting the circumstances in which we must comply with a deletion request. If we deny your request, we will communicate our decision to you.
Neurocrine Biosciences, Inc. is the controller of your personal information covered by this Privacy Policy.
Neurocrine Biosciences’ representative in the European Union and United Kingdom is DataRep, which you can contact at datarequest@datarep.com (noting “Neurocrine Biosciences, Inc.” in the subject line).
Neurocrine Biosciences has appointed a Data Protection Officer who you can contact at DPO@neurocrine.com.
The legal bases for our processing of your personal information are described in the table below.
| Processing purpose (click link for details) | Legal basis |
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Where we have a contract governing this processing purpose, the processing is necessary to perform that contract or to take steps that you have requested prior to In other cases, these processing activities are necessary to protect your, or another person’s, vital interests. |
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Where we process sensitive personal information in connection with this processing purpose, the processing is authorized by Member State law or is necessary for scientific research, historical research, or statistical purposes. In all other cases, these processing activities constitute our legitimate interests. We make sure we consider and balance any potential impact on you (both positive and negative) and your rights before we process your personal information for our legitimate interests. We do not use your personal information for activities where our interests are overridden by the impact on you (unless we have your consent or are otherwise required or permitted to by law). |
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These processing activities constitute our legitimate interests. We make sure we consider and balance any potential impact on you (both positive and negative) and your rights before we process your personal information for our legitimate interests. We do not use your personal information for activities where our interests are overridden by the impact on you (unless we have your consent or are otherwise required or permitted by law). |
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Processing is necessary to comply with our legal obligations. |
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Where we rely on your consent, you have the right to withdraw it at any time in the manner indicated when we requested the consent or by contacting us. |
Processing purpose (click link for details)
Legal basis
Where we have a contract governing this processing purpose, the processing is necessary to perform that contract or to take steps that you have requested prior to
entering into the contract.
In other cases, these processing activities are necessary to protect your, or another person’s, vital interests.
Where we process sensitive personal information in connection with this processing purpose, the processing is authorized by Member State law or is necessary for scientific research, historical research, or statistical purposes.
In all other cases, these processing activities constitute our legitimate interests. We make sure we consider and balance any potential impact on you (both positive and negative) and your rights before we process your personal information for our legitimate interests. We do not use your personal information for activities where our interests are overridden by the impact on you (unless we have your consent or are otherwise required or permitted to by law).
These processing activities constitute our legitimate interests. We make sure we consider and balance any potential impact on you (both positive and negative) and your rights before we process your personal information for our legitimate interests. We do not use your personal information for activities where our interests are overridden by the impact on you (unless we have your consent or are otherwise required or permitted by law).
Processing is necessary to comply with our legal obligations.
Where we rely on your consent, you have the right to withdraw it at any time in the manner indicated when we requested the consent or by contacting us.
We may use your personal information for reasons not described in this Privacy Policy where permitted by law and the reason is compatible with the purpose for which we collected it. If we need to use your personal information for an unrelated purpose, we will notify you and explain the applicable legal basis.
We will only retain your personal information for as long as necessary to fulfill the purposes for which we collected it, including for the purposes of satisfying any legal, accounting, or reporting requirements.
To determine the appropriate retention period for personal information, we consider the amount, nature, and sensitivity of the personal information, the potential risk of harm from unauthorized use or disclosure of your personal information, the purposes for which we process your personal information, whether we can achieve those purposes through other means, and the applicable legal requirements.
In some circumstances, we may anonymize your personal information (so that it can no longer be associated with you) in which case we may use this information indefinitely without further notice to you.
European data protection laws give you certain rights regarding your personal information. You may ask us to take the following actions in relation to your personal information that we hold:
You can submit these requests by email or postal mail as described above. We may request specific information from you to help us confirm your identity and process your request. Applicable law may require or permit us to decline your request. If we decline your request, we will tell you why, subject to legal restrictions, including legal requirements that govern clinical trials. If you would like to submit a complaint about our use of your personal information or response to your requests regarding your personal information, you may contact us or submit a complaint to the data protection regulator in your jurisdiction. You can find your data protection regulator here.
If we transfer your personal information from Europe to a country outside of it and are required to apply additional safeguards to that personal information under European data protection laws, we will do so:
Neurocrine Biosciences participates in and complies with the EU-U.S. Data Privacy Framework (“EU-U.S. DPF”), the UK Extension of the EU-U.S. DPF, and the Swiss-U.S. Data Privacy Framework (“Swiss-U.S. DPF”) (collectively, “DPF”) as set forth by the U.S. Department of Commerce regarding the collection, use and retention of personal information from European Union member countries, the United Kingdom, and Switzerland.
As a DPF participant, Neurocrine Biosciences is committed to and has certified to the U.S. Department of Commerce that it adheres to: (i) the EU-U.S. Data Privacy Framework Principles with regard to the processing of personal information received from the European Union; (ii) the UK Extension to the EU-U.S. Data Privacy Framework Principles with regard to the processing of personal information received from the United Kingdom; and (iii) the Swiss-U.S. Data Privacy Framework Principles (collectively, the “DPF Principles”) with regard to the processing of personal information received from Switzerland. If there is any conflict between the terms in this Privacy Policy and the DPF Principles, the DPF Principles shall govern. To learn more about the DPF program, and to view our certification, please visit https://www.dataprivacyframework.gov/. Our commitments to the DPF program are subject to the investigatory and enforcement powers of the US Federal Trade Commission.
We may collect, use, and disclose personal information that is subject to the DPF Principles with our third-party service providers. We restrict their access, use and disclosure of personal information in compliance with our DPF obligations. Neurocrine Biosciences may be liable under the DPF if these third parties process such personal information in a manner inconsistent with the DPF, unless Neurocrine Biosciences proves that it is not responsible for the event giving rise to the damage.
You have the right to request access to personal information received by Neurocrine Biosciences in reliance on the DPF, and to exercise choice in limiting Neurocrine Biosciences’ use and disclosure of such information. If you are interested in exercising your rights and choices, please contact us at the address, phone number, or email address listed above or update your preferences via the cookie banner on our website.
Neurocrine Biosciences does not use or share the personal information we collect for purposes other than the purposes we disclose to the relevant individuals. We do not use clinical trial participants’ personal information for purposes other than those described in the informed consent form and the study protocol for the relevant clinical trial. The informed consent form sets out choices trial participants may have under laws and regulations that govern clinical trials, such as the choice to withdraw consent for further participation in a clinical trial.
Neurocrine Biosciences does not use website visitors’ or healthcare providers’ personal information for purposes other than those described in this Privacy Policy. Website visitors and healthcare providers have the ability to opt of receiving marketing communications, as described in this Privacy Policy.
We may be required to disclose personal information received by us in reliance on the DPF in response to lawful requests by public authorities, including to meet national security or law enforcement requirements.
In compliance with the DPF Principles, we encourage you to contact us at any time as specified in the Contact Us section above with questions, concerns, or complaints about our privacy practices and participation in the DPF. You may also refer a complaint to your local data protection authority and Neurocrine Biosciences will work with them to resolve your concern.
Neurocrine Biosciences has further committed to refer unresolved DPF complaints to JAMS, an alternative dispute resolution provider located in the United States. If you do not receive timely acknowledgment of your complaint from us, or if we have not resolved your complaint, please visit https://www.jamsadr.com/DPF-Dispute-Resolution for more information or to file a complaint. The JAMS services are provided at no cost to you. If neither Neurocrine Biosciences nor JAMS resolves your complaint, you may have the right to invoke binding arbitration under certain conditions. To learn more about this option, visit the DPF’s “How to Submit a Complaint” page.
Please note that the foregoing processes apply only to the resolution of disputes regarding personal information received by Neurocrine Biosciences under the DPF. All other disputes that you may have with Neurocrine Biosciences, or any agents, representatives, agencies, officers, directors, or employees, must be resolved in accordance with the terms and conditions of any applicable websites, mobile apps, email newsletters, email subscriptions or other digital properties owned or controlled by Neurocrine Biosciences.
